Miracles happen
Man Labeled 'brain dead' May Be First to Recover from Extreme Locked-in Syndrome
I can't imagine going through this.
Man Labeled 'brain dead' May Be First to Recover from Extreme Locked-in Syndrome
A man labeled “brain dead” has become the first ever to recover from an extreme form of locked-in syndrome, which paralyzed him so completely he couldn’t even blink—something patients of this disease have in the past used to communicate—and even write books.
In 2017, Jacob Haendel was living a normal life as a head chef in Boston, Massachusetts.
But in the space of just a few weeks, his life was turned upside down after he was diagnosed with acute toxic progressive leukoencephalopathy, which in turn progressed into locked-in syndrome.
Locked-in syndrome can be caused by brain trauma, infection, or exposure to toxins, and results in slow, complete paralysis. Jacob ended up paralyzed and unable to talk or blink for a few months.
“By month five, I was at stage four, which they said no one ever recovers from,” Haendel said. “They told me I would enter into a coma and pass away.”
He is the first ever person to recover from stage 4 acute toxic progressive leukoencephalopathy.
Jacob, now 35, says “everything has changed after what happened. Everything is much more positive in all regards.”
At 27, he developed a strange pattern of symptoms, involving a high-pitched voice, dizziness, and impaired balance. Doctors at a hospital in Worcester, Massachusetts, initially suspected Jacob had had a stroke, but tests revealed it was far worse than anyone could have imagined.
“Eight doctors were standing in my room, and I knew right away it was bad news,” Jacob said.
In 2017, Jacob Haendel was living a normal life as a head chef in Boston, Massachusetts.
But in the space of just a few weeks, his life was turned upside down after he was diagnosed with acute toxic progressive leukoencephalopathy, which in turn progressed into locked-in syndrome.
Locked-in syndrome can be caused by brain trauma, infection, or exposure to toxins, and results in slow, complete paralysis. Jacob ended up paralyzed and unable to talk or blink for a few months.
“By month five, I was at stage four, which they said no one ever recovers from,” Haendel said. “They told me I would enter into a coma and pass away.”
He is the first ever person to recover from stage 4 acute toxic progressive leukoencephalopathy.
Jacob, now 35, says “everything has changed after what happened. Everything is much more positive in all regards.”
At 27, he developed a strange pattern of symptoms, involving a high-pitched voice, dizziness, and impaired balance. Doctors at a hospital in Worcester, Massachusetts, initially suspected Jacob had had a stroke, but tests revealed it was far worse than anyone could have imagined.
“Eight doctors were standing in my room, and I knew right away it was bad news,” Jacob said.
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